Medically Complex Children

 

Community Support Line/Care Coordination Program (DPH)

The division for Perinatal, Early Childhood, and Special Health Needs

(800-882-1435) toll-free statewide Community Support Line offers information , technical assistance and resources for families with children with special health care needs and providers serving these families. These resource specialists are available Monday through Friday 9 am to 5 pm. http://www.mass.gov/eohhs/gov/departments/dph/programs/community-support-line.html

Make a Wish

Grants wishes for children with life threatening illnesses in Massachusetts and Rhode Island. There are three offices in Massachusetts and Rhode Island. Wishes are granted for medically eligible children from 2 and a half up to 18 years old. A medical professional or parent can refer a child.

http://www.mass.wish.org

Massachusetts Technology Assistance Resource Team (MASSTART)

MASSTART is a free collaborative service that helps families and schools plan for the health care and safety of children and adolescents with special health needs, especially those assisted by medical technology. By ensuring safety in school for children with complex needs, MASSTART supports the educational goal of placement in the least restrictive setting.

http://www.mass.gov/eohhs/gov/departments/dph/programs/ma-technology-assistance-resource.html

Medicalalert

Providing live 24/7 emergency medical information and identification services for members and their families. Kid Smart membership is a special service that ensures children and teenagers 17 and under with no know conditions or those with medical conditions, allergies, or special needs, are protected with our live 24/7 emergency response, identification and family notification services.

http://www.medicalert.org/

Pediatric Palliative Care Network

Families caring for children with life-limiting illnesses face difficult and sometimes lonely challenges. The goal of the Pediatric Palliative Care Network is to improve the quality of life of the entire family through its support and services. The Pediatric Palliative Care Network serves the unmet physical, emotional and social and spiritual needs of children in Massachusetts with life-limiting illnesses. Our services are provided at no cost to children 18 years old or younger who have life-limiting illness.

http://www.mass.gov/eohhs/consumer/community-health/family-health/special-health-needs/pediatric-palliative-care.html